There is an old fruit tree on my property, planted when my youngest was born, which has grown too tall for me to reach, yet it is laden with fruit. I am not good with ladders (I probably have mentioned here someplace that I have both lupus and fibromyalgia, and get a touch of vertigo from time to time when I am unwell because of these things, so I don't do ladders). Anyway, the tree is in a place where it's hard to access the fruit, until I began to see windfall apples in the brush around it, like red-streaked Easter eggs. I learned to collect the windfalls quickly, in the morning and evening, before anything had a chance to get at them. A quick wash, and they are perfectly nice (they fall into clean brush and leaves anyway, not the ground). Then, I had a brilliant idea and shook the tree just a little (it's still fairly thin trunkwise, as fruit trees tend to be for awhile). And there was a rain of apples, falling like a bounty from heaven, their fallings cushioned. So, now there's a bowlful of perfect, clean apples, a free gift.
Someone recently asked me why I don't blog about having lupus and fibro. The truth is, this blog is the one place I feel I don't have to focus on either of them, for my daily life is spent dealing with them so often, and my two chronic illnesses are the direct reason it has taken me seven-plus years to write my book. Plus, though I don't mind people letting me know about alternative treatments, I find that the two things that directly have helped me are following my doctor's orders (I was fortunate to find a good rheumatologist who supports alternative treatments that work for me such as acupuncture as well as a sound medical program, and I have a good medical team here in Santa Cruz), and following his directives about exercise and weight loss. I find that exercise is the ONLY way to the pain and fatigue associated with fibromyalgia especially, no matter how much it hurts to get going (and believe me, if you have it, you know exactly what I am talking about).
Plus, I have no desire to chronicle for the public's eye the yuckier details of having a chronic illness like lupus--mouth and scalp sores like a Biblical plague, for example, and the latest fun, blurred vision from time to time, etc. What I do is just keep going, gauge each day as it is, and try to enjoy life no matter what. I guess that's the heart of life, in some ways--taking whatever joys come, like a gift of windfalls on a summer morning.
My name is Joan McMillan and this blog is, as Emily Dickinson says, "my letter to the world." I am currently working on a nonfiction book about the murder of a young woman, Asha Veil, born Joanna Dragunowicz, and her unborn daughter, Anina, on September 9, 2006. My book is meant to honor her life and illuminate the need to create a safer world for women and children.
To read an excerpt from the book, please click on the following link:
ashaveilbook.blogspot.com
An excerpt from The Pleasure Palace, my romantic comedy, can be found here:
3 comments:
Ciao, I've been meaning to get over here to your place forever, and now that I've found it, I'm not sure you'll be able to kick me out again. Hope you don't mind ;)
My best friend has fibromyalgia (not in Blogger's spell check, hmm) with a family history of lupus and other similar ailments; I say this only to say I know a little about it, not to imply I can imagine what you deal with, of course. The fact that so many people, including doctors, don't take it seriously is so disheartening and ridiculous when it can be so utterly debilitating at times.
Anyway, I can't wait to have a look around here, so I'll stop this comment now :)
Thank you so very much for your kind comment!! Yes, in a word, fibromyalgia SUCKS. I am glad my own doctors take it very seriously and most of the people I know--but I can totally sympathize when I hear of your friend's story, believe me. The illness is very capricious and one simply can't tell how one's body is going to be from one day to the next.
I always just gauge things day by day.
thank you for visiting and being a very welcome visitor to this blog!
ciao, Ms. Strega
BTW to all my faithful readers: there are days fibromyalgia really is the presenting problem, and other days when lupus is the presenting problem, and some days both are the problem.
But rarely do I have a day where I'm not dealing with something related to one or the other, to greater and lesser degrees (lupus flares every single month for me, when Auntie Flo is on her way, without fail). It sucks, it really does, but most days I try to just have the best day I can, no matter what.
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